Recorded in September 2022

With Tania Thomas from IHC – Idea Services

Advocating for a More Inclusive New Zealand: Tania Thomas and the IHC Mission

Navigating the Path to Disability Inclusion and Rights in Aotearoa

In our recent episode of the Kultura podcast, we had an enlightening discussion with Tania Thomas, the Director of Advocacy for IHC New Zealand, along with our incredible co-hosts. The conversation spanned various facets of disability inclusion, rights, and the advocacy required to support the community. We delve into the profound work being done by IHC and reflect on the vision for a truly inclusive society.

The Backbone of Inclusion: The Work of IHC

A Lifelong Commitment to Disability Advocacy

One of our speakers shared their heartfelt journey in the disability sector spanning over four decades. Their unwavering dedication exemplifies the lifelong commitment required to create lasting change. The speaker noted, “The work has allowed me to make lifelong friends and has been deeply rewarding. Despite all the changes, I’ve never left the disability sector.”

This sentiment underscores the personal fulfillment and impact that comes from advocating for those with disabilities, demonstrating the personal ties and deep connections that often drive these efforts.

Tania Thomas: A Champion for Disability Rights

Tania Thomas, a grandmother and mother from Northland, with Ngati Kahu, Scottish, and Ngati Muhurehure heritage, has been an unyielding advocate for community inclusion and the upholding of rights for people with disabilities. In her role with IHC, she leads various services and programs designed to support individuals with disabilities and their families.

IHC supports approximately 3,500 families across New Zealand, offering an array of services ranging from residential support through Idea Services, to accessible, affordable housing for people with mobility issues. The charity also emphasizes the importance of diverse funding avenues, as government funding alone remains insufficient.

Programs and Services: Building a Supportive Framework

Family Liaison and Volunteer Services

Among IHC’s standout services is its family liaison workers, who play a vital role in supporting families in need. These workers provide essential guidance, assistance, and advocacy to help navigate the often-complex terrain of disability services.

Furthermore, IHC’s volunteer services bring together community members who contribute their time and skills to enhance the lives of individuals with disabilities, demonstrating the power of communal support and solidarity.

Fostering Talent Through The IHC Art Awards

The IHC Art Awards is another notable initiative, celebrating the artistic talents of individuals within the disability community. The annual event, typically held around August, provides artists with a platform to showcase their work. As one of our speakers highlighted, any proceeds from sold artworks go directly to the artists, thanks to the sponsorship which covers administration costs.

Additionally, the organization hosts ongoing photography competitions and maintains a resource-rich website, ensuring a constant engagement with the community and a celebration of their creative contributions.

Advocacy and Vision: Striving for Equity and Inclusion

The Bigger Picture: Aotearoa’s Vision of Equity

IHC’s mission aligns seamlessly with Aotearoa’s broader vision of equity. The organization advocates for systemic changes necessary to foster inclusion. Speaker A stressed the importance of engaging with the Health and Disability Commissioner’s advocacy service for resolving issues related to health or disability services. This service is free, independent, and pivotal in addressing miscommunications and advocating for individuals’ rights.

Embracing Difference: The Perspective on Autism

Autism, a focal point of the episode, was discussed in a nuanced manner. Approximately 1 in every 59 children are born with autism. The Maori term for autism, “Takiwatanga,” translates to “in their own time and space,” emphasizing a different perspective on life.

Our co-host appreciates this term, saying, “Autism involves varying ways of thinking, doing, and connecting due to its spectrum nature.” This respect for diverse cognitive perspectives is foundational to fostering an inclusive society.

Moving Forward: Digital Fluency and Representation

Digital Engagement Post-COVID

The post-COVID era reinforced the importance of digital fluency in the disability sector. IHC’s initiatives, including providing tablets to residential homes and introducing online activities like drumming sessions, highlighted innovative approaches to maintaining social interaction and support during challenging times.

Health Sector Evolution

The discussion also covered significant changes in the health sector, such as the shift from Health and Disability Services to Health New Zealand. The hope is that entities like Te Aka Whai Ora, the Maori Health Authority, will lead to better data collection and representation for disabled individuals through Whaikaha.

Future Aspirations: Stronger Representation

Looking ahead, stronger representation for disabled individuals at various organizational and governmental levels remains a key aspiration. Speaker A encouraged ongoing support and constructive criticism to improve services and policies continually.

Final Thoughts: Empowerment Through Support

The episode concluded with a powerful message urging families and caregivers to not hesitate in seeking help. As Speaker A advised, “Take care of your health and well-being, seek support, and enjoy the parenting journey despite its challenges.”

Indeed, the ongoing commitment to advocacy, combined with a supportive community, can drive the vision of a more inclusive Aotearoa where every individual, irrespective of their abilities, can lead a fulfilling and empowered life.